Speed, Grace, Emotion

Yesterday was bookended by hockey for my two daughters, a six a.m. practice for Mia and a seven-twenty p.m. game for Zoe. I coached both, skating with Mia’s team and handling the offensive door on the bench for Zoe’s team.

Zoe ready to receive a pass

In between, I wrote and edited my book for parents who want a map of the future but are overwhelmed due to early challenges for their child. In drafting the closing section, a call to greatness for parents, I drew from a letter my father wrote thirty-one years ago, just after Thanksgiving. Parts of that letter have been my personal rallying cry for decades.

That Thanksgiving of 1989, my parents had come to the Boston area to my sister and brother-in-law’s home. Their first daughter, my niece, was a toddler. I joined them too as it was just an hour for me to get there from Providence, where I had a short break from my studies at Brown University and my hockey practices. My father was flustered when he and my mother arrived from their long drive from Ithaca. He seemed agitated about misplacing his glasses.

My father loved ice hockey. He never played but he doctored the Cornell men’s team for twenty-five years. Before almost every game, he put his nose in the locker room and shouted, “Good luck, give ‘em hell!” And, the players responded, “Thank you, Doc.” And, with that ritual, he felt like a member of the Cornell hockey family.

He wrote a letter to the team the week after Thanksgiving because it would be the first Cornell vs. Harvard game that he would miss since Cornell first beat Harvard in 1962. He shared, “Hockey has been a passion for me, consuming fall and winter months. I love the game because of the speed, the grace, the emotion. I love you kids who play it.”

He explained that he would miss the game for neurosurgery to remove his own brain tumor. He had diagnosed this tumor that week after realizing his timing was off when making left turns when driving. His visual field was reduced when looking to the left. He did not want sympathy and went on to encourage the team:

“I know from long years’ exposure to hockey, that hockey games are won on the ice. They are won by hard work in the corners, in front of the net.  They are won by fierce forechecking, by concentration and intensity. They are won by getting to the puck first. They are won by playing both ends of the ice and by just plain damn hard work. It means not giving up on any loose puck, always trying to get to the puck first.”

Facing the uncertainty of surgery, he urged the team to carry on, to do their work. He went into surgery “with my eyes wide open, hoping for a cure.” He got time, fourteen months to spend with all of us, his family, and while he lost some of the visual-spatial skills that had been his livelihood, his language and social skills remained so he could do the important work of saying goodbye.

As I was a college student at the time of his illness, the words of this letter and a personal one he wrote to us in his immediate family the night before his surgery became resources that I drew upon when nothing else made sense. I had lots of time to embody “the speed, the grace, the emotion” at hockey practice for two hours most days of the winter season. That season and the next, hockey alternately meant everything and nothing to me. It was cathartic to have reliable vigorous exercise, supportive to have a team sport and teammates with whom to practice, play, and hang out. I poured my heart into the game and left it all out on the ice. Sometimes, when frustrated, I walked away from the rink feeling like none of it mattered.

I was twenty when my father wrote that letter. He died when I was twenty-one, months before I graduated from college. One of my nieces, who was six then, used to come watch my college hockey games when Brown played against Cornell. She and her younger brothers grew up playing hockey, and she now coaches hockey and teaches at a prep school. I am a mother to two daughters who play hockey. I help coach. Other family members still play hockey recreationally, and those in Ithaca watch the Cornell games in ordinary winters.

The hockey legacy is strong thirty-one years later in my extended family, and that spirit of hard work persists on and off the ice. As my father closes the letter, “Work hard in the corners. Good luck. Give ‘em hell.”

 

 

 

Toward Universal Access: a lasting benefit of virtual work

I have been building my practice as a body and brain teacher for a couple years, with a combination of in-person and remote sessions. Now, due to the COVID-19 pandemic, all of my clients are remote, of necessity. 

I met with one of my long-term clients by video for the first time a couple weeks ago. For the past eighteen months, I’ve been making house calls to work with Nikita. He uses a wheelchair and has mobility limitations due to cerebral palsy. Here’s what he said during our first virtual session, “Now, everyone is living like me. Previously, I was told that many things were impossible. Now, everything is possible.” He is a graduate student. He went on to tell me how elderly faculty are learning how to put their courses online, and everyone is figuring out how to meet remotely via video. Most institutions have shut down physical locations, and are finding ways to keep open virtually.

Nikita has quad cerebral palsy which affects all four limbs, he uses two quad canes to walk short distances within his apartment, otherwise using a wheelchair for longer distances. He had gotten a variety of balls to work with himself and asked for a lesson on how to use them, something he’d already asked for before we were unable to meet in person. He chose a soft but spiky ball as the most helpful to him, and he began by showing me how he squeezed it and passed it from hand to hand.

We worked on coordinating breathing with passing the ball from hand to hand, 3- and 4-part breathing sequences. Then, we rolled the ball along the inside of one forearm, and around one wrist using the other hand, one way then the other way, with one hand then the other. He has more spasticity in his right hand, so we started with the ball in his left hand. It was a private lesson with this ball as a prop. He noticed a softening in his breathing, and the muscle tone in his arms. I shared the audio recording with him so he can use it to practice on his own. I asked him to walk with his canes as he does at the end of most of our lessons and his grip was softer, his ease greater.

This is what I wish for every lesson I offer, whether it is in person or remote, with an individual or a group, I wish for small changes that feel significant to the person experiencing the change. And, in this time of great global uncertainty, I offer this story as I think it represents hope for our future. If we can learn to live together, and work together in ways that lead to truly universal access to services and options that have long been denied to those living with mobility limitations, we will have made the world better. 

At our next session, after reviewing a draft of this blog post, Nikita reminded me that while opening up access is important, having everyone experience temporary physical isolation is perhaps even more significant in its potential for cultivating empathy in the world for the kind of isolation that many disabled people experience not just for weeks or months but for years and decades. I will take up this topic of isolation and its connection to mental health in another post. 

In My Bones

Last weekend, I got to spend time on the floor exploring the relationship between my seventh cervical vertebra and my sacroiliac and hip joints. I was with about forty other practitioners, students, and people curious about their bodies.

We were guided by Olena Nitefor, a skillful and anatomically-oriented teacher of movement through the Feldenkrais Method. She was one of my teachers in the early 2000s when I studied Feldenkrais for 800 hours over a period of 3.5 years to complete my professional training. I remember her anatomical focus from that time. It stood out as not all trainers use the words for the bones in this way.

This time, she brought a disarticulated skeleton, strung on fishing line, and as she verbally directed our sensations through movement directions and then demonstrated movement on a full skeleton, on live people, and on this disarticulated skeleton, I found myself back in relation to bones, mine, and others I’ve seen and touched. I took time to play with those individual bones strung on fishing line, to figure out how the angle of the facet joints between bones shifts as one moves down the spine, how that impacts which kinds of movement are more and less accessible just because of skeletal constraints.

My father was an orthopedic surgeon and a fisherman, so bones and fishing line took me back to my memories of him. I remember being particularly fascinated by models he had of the human hand and foot. In these models, I could remove layers of vessels, muscles, and bone. Whenever I visited his office, I would take these apart and put them together again.

He also brought home big box video machines when he needed to review a new surgical procedure. There, on the kitchen counter, in the years before VCRs were widespread, he would set up this machine to study a surgery. It was gruesome and normal all at the same time to see this surgery playing out on the same counter where he carved our Thanksgiving turkey with surgical precision.

In college, as I began taking geology courses as part of my geology-physics/mathematics concentration (major), I was encouraged to take, “The Fossil Record” as a retiring professor was teaching it for the last time. The day that I arrived in class to find several different fossil skulls lined up for our inspection, my stomach turned. But, it wasn’t because they were skulls. It was because that week, my father had diagnosed his own brain tumor, so touching a skull felt a bit too raw.   

A few weeks after that, I was home for the December break, and my father asked to talk with me. He seemed serious, as if every visit, every conversation might be our last. He had survived brain surgery to remove the tumor, and was determined to get better. But, what he wanted to share with me was about me and my future. He knew that over many dinner conversations throughout my adolescence, I had soaked in his concerns about how medicine was changing becoming more managed, and that I had found another direction for my passion for math and science, newly declaring my intention to study geophysics. He said, “Do what you want to do. But, I want you to know that being a doctor has been deeply meaningful and rewarding, and it’s not my place to convince you not to pursue medicine if you want to do that.” My father died February 9, 1991, just a few months before I graduated from college. 

I stuck with my geophysics plan for a while, through a Ph.D., a postdoc, and a first job, and then shifted to software engineering for most of the past two decades.     

In parallel with that academic and professional path, I’ve been continuing my apprenticeship in understanding how the skeleton works. I discovered the Feldenkrais Method while walking around La Jolla, California, learning my new neighborhood where I had rented a room in a three bedroom house close to the beach and biking distance to graduate school at Scripps Institution of Oceanography. I found a poster announcing a class in Feldenkrais “Awareness Through Movement” at the local recreation center. I decided to try it to heal a shoulder injury that nothing had helped, not the three daily doses of 800 mg of Ibuprofen my father gave me in a giant bottle straight from the drug rep, not the offer of surgery from his thoracic surgeon colleague. And, playing Division I ice hockey through college most definitely made my shoulder worse, especially the dozens of slapshots I hit in practice daily as catharsis while my father was dying.      

By attending that gentle movement class for the six years I lived in La Jolla, lying on a mat on the floor every Thursday at 6 pm, I learned to move my right arm and shoulder and ribs in entirely new ways, learned to be with myself and attend to myself in new ways, ways that have held my fascination for decades, led me to a Feldenkrais professional training, and the best preparation I could have asked for in parenting my two daughters, including my stroke survivor.    

And, in some sense, returning to touch the skeletal bones this past weekend felt like returning home, touching bones as part of my emerging professional identity. I think the seed my dad planted with that important life conversation in the face of his mortality was his gesture to enable me to trust myself to choose my life path. 

365 Days of Reading Aloud

Tonight, I gave each of my kids a gift certificate to get a book of their choice at Barnes & Noble this weekend.

A year ago, Zoe and I made a reading promise after I read Alice Ozma’s The Reading Promise which I had picked up at the Scholastic book fair on Zoe’s curriculum night for kindergarten. Zoe and I agreed that I would read aloud to her every night for one-hundred nights. Like Alice and her father, we couldn’t stop. We’ve read aloud every day, most mornings and most nights, sometimes only one or the other but more often both for the past 365 days and there is no plan to stop. We’ve read forty-seven chapter books this year and countless picture books. I love reading high quality literature to my children and love that they seem to have an almost insatiable appetite for listening. It’s usually the first thing we do together in the morning and the last thing we do together before they go to bed. Occasionally, busy schedules mean we skip one or the other on any particular day, but never both. We have made sure of that!

For our full reading list over the past year (and even the year before that before our reading streak was official), check out our Reading Streak page.

Their reading endurance has increased tremendously so I get frequent requests for “one more chapter” which I only am able to honor sometimes.

This summer, we listened to several chapter books either on CD in the car or on my iPhone via Overdrive (digital audio loaned through public library).

  • Harriet the Spy by Louise Fitzhugh
  • Matilda by Roald Dahl
  • Island of the Blue Dolphins by Scott O’Dell
  • Mr. Popper’s Penguins by Richard and Florence Atwater
  • Because of Winn-Dixie by Kate DiCamillo
  • All of a Kind Family by Sydney Taylor
  • A Little Princess by Frances Hodgsen Burnett
  • The Boxcar Children Collection (all 3 books)

Here are some others we also enjoyed on the car rides that were more accessible to Echo and still enjoyable for Zoe:

  • The Bippolo Seed and Other Lost Stories by Dr. Seuss
  • Horton Hears a Who! and Other Sounds by Dr. Seuss
  • Frog and Toad by Arnold Lobel
  • Tikki Tikki Tembo retold by Arlene Mosel
  • The Velveteen Rabbit by Margery Williams

Echo has joined in the reading streak, requesting Charlotte’s Web repeatedly and snuggling with us to enjoy part of whatever we are reading.

Our mainstay continues to be the Little House books and we have now covered all five generations of Little House women (Martha, Charlotte, Caroline, Laura, Rose). Just tonight, we finished reading, Little Clearing in the Woods by Maria D. Wilkes, which is the third of seven Caroline books. Once we finish the final four books of the Caroline series, Zoe says she wants to read the Laura and Rose books for the third time.

Despite this devotion to the Little House books, we have gradually introduced other books.

We borrow extensively from our local library which conveniently has a branch across the street from Echo’s daycare. And, since many of the titles are out of print or less readily available, I have developed a routine of making requests through interlibrary loan. We also used interlibrary loan and weekly library visits over the summer to read more than fifty of the picture books on the list of suggested reading options for kids entering first grade.

I get inspiration from friends and family who make suggestions and from some lists of books including those from A Mighty Girl and this list of Teachers’ Top 100. We are even using these lists and our emerging favorites to choose books as gifts for the many birthday parties the kids get invited to attend.

We welcome new reading suggestions and look forward to many more days and years of reading aloud together.

 

 

Monkey Mia

Originally Posted May 11, 2013

There is a place on the west coast of Australia called Monkey Mia. It’s famous for the dolphins that come ashore. I was there in about 1995 after a research cruise that ended in Perth. But, we never saw any dolphins.

“Monkey Mia” is a good nickname for my Mia now who seems utterly determined to master the monkey bars as soon as she can.

This evening, we went to the park. Zoe is a pro at the monkey bars, so fast that I couldn’t get any pictures of her on them. I was also trying to help spot Mia. Little did I know that Mia had moved on and no longer wanted my help.

Zoe is trying to master her next challenge with climbing trees  with branches that are kind of hard to reach.

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So, here’s Mia in a series of action shots. Her focus and motor planning are palpable. She makes the riskier big reach with lefty as she knows that’s safer for her and then she’s able to reach and extend her fingers to grasp with righty.

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Every occupational therapist who has worked with Mia has focused on helping her extend her right arm, hand, and wrist. This shot below is an incredibly clear view of how well she has to do that to succeed in her goal of mastering the monkey bars.

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And, here’s a video of Mia putting it all together on the monkey bars.

Earlier this week, Mia figured out how to get started on her bike on her own. She’s been riding it well for a few weeks but still needed a tiny push to get going. No longer. It’s almost as if each new motor skill she masters drives her to find the next challenge. In the last picture above, she’s reaching for the fifth bar. There are only two or three after that. And, she wants to go back to the park to practice so she can go all the way across. She did the monkey bars so many times this evening, dropping to the ground each time her arms gave out. She’d get up and say, “I need to try again.” I started to worry that her determination was so intense she might keep trying past the point of fatigue and injure herself. I gave my 5 minute warning and we biked home for bedtime snack.

Update on September 3, 2013

Here’s Mia yesterday at 4 years 2 months old (four months after her early forays shown above) showing me that she has been practicing and can go all the way across the monkey bars. Note how confident and nonchalant she is. She just knows she can do it and she does. You might also notice that she consistently reaches first with her left arm (unaffected) and then with her right arm (affected by stroke). She does this for every one of the seven bars, reaching first with lefty, then with righty. She happens to be wearing the same lucky butterfly shirt she wore in May when I first captured her learning to swing on the monkey bars in the still and video images above.